Not great news, but not life-or-death news…at least I don’t think so yet.
I’ll go into more detail tomorrow because I desperately want to crawl in bed, get warm & drift off to sleep…but…
Here’s a quick & dirty run-down:
- Could be multiple sclerosis (MS)
- Could be lupus
- Could be sarcoidosis (not even sure what that one is yet)
- Could be lyme disease
- Could be something entirely off the radar
I’ve successfully donated 2 quarts of blood for every test known to man & results should start coming in over the next few days to few weeks.
Those tests will not be definitive answers.
They’ll become a collection of everything under the sun for the Neurologist to consider while making his final determination (aka educated guess).
The appointment went well. The doctor seems nice. The MRI & I are going to become very good friends. And a lumbar puncture is in my future.
Thanks again to everyone for all their well wishes, thoughts & prayers.
There’s so many people I need to respond to directly – so forgive me if I take some time to digest everything first & get some sleep. It’s been a long day.
Much love,
Jennifer
PS – Scott, thanks for the chuckle this morning! : )
81°F
My daughter has and has had sarcoid for about 13 years now. We never even knew of such an ailment until she was diagnosed. She has it in her right lung and my understanding of it is that you can live with it if you’re careful and don’t abuse yourself by getting over-tired or run down. Its an immune system disorder. And that’s all we really know about it. You’re right the news is not that bad and not that good….mainly because we don’t understand the possible ailments. Hang in there, with knowledge comes strength. You’re in my prayers. God Bless.
Thank goodness you got some answers today. You have several choices that you can work with and live a long and happy life with. My neice has the lyme disease and she is doing great, medicine for that one and it’s under control. Hopefully the test will come in quickly( yeah right) and you can get on whatever meds. will do the trick.
Our thoughts and prayers still go with you and may your fears be calmed knowing what you know now. I still think it might have been high blood pressure, at least that is my prayer for you. Very manageable.
Still praying lots for you! Glad I made you chuckle — that was entirely my goal!
Hey, I didn’t see anything that wasn’t manageable with the right drugs! That is great!!
I know you are tired from the day, but at least you have some beginning answers, and with that, you should be able to rest a little easier. You are a strong woman and can kick butt and take names any day of the week. You will do the same with this! Consider it just a little speed bump in the road of life!! (I should have been a poet. Wait…I am…my feet are long fellows! )
Love you much.
Those are interesting but accurate diagnostic differentials that are being run. The blood tests and the MRI should be able to rule out some of those. What about the elevated blood pressure. Doesn’t he want to treat that or did he refer you back to your PCP? Tell Cynthia to log on and talk to me today about my car problem. It’s 8:09 p.m. and I’ll be around until your guy’s 2 p.m. before I probably will conk out
soooo does this mean that the migraine is gone? Just checking….
(small favors)
Keeping you in my prayers!
I know from personal experience that sometimes the hardest thing is waiting for results from tests and xrays. There is just no way our minds can rest while waiting, and we play out every conceivable scenario until we are just one big ball of stress. Just think how much waiting we do in life, period. Holding on the phone for a “live” person, stuck in traffic, in line at any place of business from banks and department stores, to my personal favorite {and most probably yours}, waiting for doctors to see you! I, myself, when I arrive at the pearly gates and St. Peter says “come on in”. plan to remind him that I have spent approximately 5 years waiting for one thing or another. Therefore, I’ll request to be sent back to recover that time before I’m called again! Sounds good, doesn’t it? ……Anyway, my thoughts and prayers remain with you. God Bless.
Jenn, I thought of you today as my husband and I watched “Hachiko: A Dog’s Tale” on DVD. It is a FANTASTIC dog lover movie and my husband asked if the little puppy (an Akita) was the same breed as Libby Blue! (I showed him her grumbly video.) Anyway, I wanted to share, maybe you can rent it in Korea? I think you’d enjoy it.